Centers of Excellence

Massachusetts General Hospital

Medical Leader:
Katherine B. Sims, MD, Pediatric Neurologist

Phone:
(617) 726-5732
Boston, MA
USA

Nationwide Children’s Hospital

Medical Leader:
Emily de los Reyes, MD, Pediatric Neurologist

Phone:
(614) 722-4629
Columbus, OH
USA

University of Rochester Medical Center

Medical Leader:
Jonathan W. Mink, MD, PhD & Jennifer Kwon, MD – Pediatric Neurologists

Phone:
(585) 275-4762
Rochester, NY
USA

The Blue Bird Circle Clinic Batten Disease Center of Excellence at Texas Children’s Hospital

Medical Leader:
Gary D. Clark, MD, Pediatrics, Neurology and Neuroscience

Phone:
(832) 822-1759 [Main] or (832) 822-1750 [Clinic] Houston, TX
USA

Institute for Mother and Child Healthcare of Serbia Belgrade

Medical Leader:
Ruzica Kravljanac, MD, PhD, Neurological Department

Phone:
Ruzica Kravljanac, MD, PhD, (+381) 64 261 2210 or Appointments at Nurse Ljubica (+381) 11 310 8242
Belgrade
Serbia

Hospital de Niños de Córdoba

Medical Leader:
Norberto Guelbert, MD, PhD, Metabolic Genetics & Raquel Dodelson de Kremer, MD, PhD, Metabolic Genetics

Phone:
(+54) 351 4575974
Argentina