June Quarterly Grief Share Event 6/24/21 7pm EST
Please consider joining if your heart is heavy. We [...]
BDSRA is looking to add Board Members
One the greatest keys to success for a nonprofit is [...]
Your May 2021 Illuminator is here!
Your May Newsletter is Here!
REGENXBIO Inc. Update for the CLN2 Community
Click here to see full PDF Message to CLN2 [...]
Your April 2021Newletter is Here
Click here for the April Illuminator.
BDSRA Supports Newborn Screening in Ohio HB110
State Representative Scott Oelslager, Chair Ohio House Finance Committee Ohio [...]
Virtual 2021 BDSRA Annual Family Conference- Registration is live!
ABOUT THE CONFERENCE The BDSRA’s signature event each year [...]
BDSRA 1st Annual Equipment Exchange Swap Party
Batten Families, Please consider joining us for our 1st [...]
International Batten Disease Awareness Day Virtual 5k Registration is Live
To register visit: https://web.charityengine.net/IBAD2021
Your March Newsletter is here!
Your March Newsletter is Here!