Media Contacts

If you are a journalist or member of the media and would like more information or to arrange an interview, please contact:
Toll-free: 1-800-448-4570
2780 Airport Drive, Suite 342 Columbus, Ohio 43219

Facebook: www.facebook/BDSRA
Twitter: www.twitter/BDSRA

Media – Raising Awareness About Batten Disease

Public Service Announcements (PSA’s) – coming soon

Guidelines for Reporting and Writing about People with Disabilities – coming soon

Press Releases and Statements – coming soon

Fast Facts about Batten Disease – coming soon

Learn about our families affected by Batten disease