Batten Disease Support and Research Association
120 Humphries Dr., Suite 2
Reynoldsburg, OH 43068
1-800-445-4570 or 740-927-4298

March 1, 2002

Special Announcement

The Batten Disease Support and Research Association (BDSRA) is pleased
to announce that limited funds are available to promote research and/or
assist in a viable research project/s for, but not limited to,
development of novel therapeutic approaches to treatment for NCL,
development of new or novel animal systems for researching and
understanding the pathogenic mechanisms of NCL, and development of
treatments that will alleviate the symptoms of Batten Disease, and other
projects that further the understanding of NCL. Proposals will be
received for all forms of NCL and general research into NCL. Multi- year
proposals are generally discouraged unless there are extenuating
circumstances.

Grant awards are available up to $35,000. Note that there is a minimum
of $2200 specified for research into Adult Onset NCL (Kufs Disease).

All grant award(s) must be used to cover direct costs of the
project/investigation and may not be used for overhead costs. In the
event the amount changes, it and any other changes, will be announced on
the BDSRA website - http://www.bdsra.org.

The submitted proposals must be concise: three to five pages in length
and include a working hypothesis, preliminary results pertinent to the
specific investigation, available resources, research proposed, a short
budget, collaborators, and the anticipated results and their
significance. Include in proposal, or as attachment, your current
funding, USPHS or NINDS grant(s) and private support. Supplementary
support for funded NIH projects will not be supported. An original and
seven copies of submissions to BDSRA must be accompanied by a curriculum
vitae. Also include information relevant to any matching funds that may
be available through your university/institution affiliation or other
funding sources.

Applications will be reviewed based upon the quality of the proposed
science, the probability of achieving the specific aims proposed and the
likely-hood of securing federal funding for continued research.

As a condition of award the investigator must provide assurance that a
report will be made to BDSRA within 12 months of the award date with a
short interim report after six months. Proposal preparation time should be minimal.

In addition, BDSRA is including in it’s 2002 Request for Proposals, the
establishment of one postdoctoral fellowship of up to $40,000 for salary
and benefits per annum, for two to three years OR a studentship of up to
$22,000 for salary and benefits per annum for up to two years. Continued
funding for years two and/or three are contingent upon submission and
evaluation of a progress report three months prior to renewal for
funding. Applications will be reviewed based on strength of the proposal
(as described above), the postdoctoral/studentship applicant and the
laboratory in which the fellowship/studentship will be performed.

Recipients of awards from BDSRA, in addition to providing progress
reports, are required to provide to BDSRA copies of any publications
(abstracts, etc.) resulting in whole or in part, directly or indirectly,
from research funded by the award.

Appropriate acknowledgment of BDSRA funding must be noted in such
publications. In addition, if a recipient's research that has been
funded by the BDSRA results in any new discovery or invention that may provide benefit to individuals with Neuronal Ceroid Lipofuscinosis, the BDSRA shall retain the right to use, as it deems appropriate, such discovery or invention for non-commercial research purposes. Furthermore, the recipient and/or the recipient’s institution shall immediately notify the BDSRA, if BDSRA funds have supported research that results in the recipient and/or the recipient’s institution seeking to make any commercial gain, patent application or secure any other proprietary rights to legally protect any discovery or
invention resulting, in whole or in part, directly or indirectly, from
the research. The BDSRA shall be entitled to an equitable share of any
patent, proprietary right and/or commercial gain that accrue to the
recipient and/or the recipient’s institution as a result, either in
whole or in part, directly or indirectly, of BDSRA funding. The BDSRA’s
equitable share shall be based upon the level of contribution the BDSRA
funding had on the research.

BDSRA favors scientists who share biological samples and collaborate.

Submitted proposals must be postmarked no later than 11:59PM, June 15,
2002.

Please submit proposals to BDSRA, 120 Humphries Dr., Suite 2,
Reynoldsburg, OH 43068.

Inquiries may be directed to Lance W. Johnston, Executive Director,
BDSRA, at 1-800-448-4570 or 740-927-4298.

Email address: bdsra1@bdsra.org.

Larry J. Killen President

Lance W. Johnston Executive Director