Kansas City, MO - August 8, 2004
BDSRA awards research funds at the Annual Family Conference

Mark Sands, Ph.D., Washington University in St. Louis - $28,976
"Systemic and CNS-Directed Therapies for Infantile Neuronal Ceroid Lipofuscinosis"

Beverly Davidson, Ph.D., University of Iowa
"Tripeptidyl protease I: Characterization of the mouse model and gene replacement therapy"

Kwi-Hye Kim, University of Medicine & Dentistry of New Jersey -$22,500 (studentship)
"Determining possible overlapping function of TPP-1 & DPP-1"

Jared Benedict, University of Rochester - $23,000 (studentship)
"Elucidating the interacting partners and subcellular localization of the NCL Proteins"

Scott Melville, Ph.D., University of New South Wales - $7175
"The identification of NCL gene/s in Border collie dogs"

David Palmer, PhD, Lincoln Univ.(NZ) & Imke Tammen, PhD Univ. of Sydney- $35,000
"Genetic characterization of neuronal ceroid lipofuscinosis in animal models"

Martin Katz, Ph.D. - University of Missouri - $35,000
"Dog models for ceroid lipfuscinosis"

Jonathan Cooper, King's College London - $12,500
"The development of zebrafish models of Neuronal Ceroid Lipofuscinosis"

David Pearce, Ph.D., University of Rochester - $44,000
"Batten Disease Diagnostic and Clinical Research Center"

Yu Tian, University of Medicine & Dentistry of New Jersey - $40,000 Postdoctoral Fellowship - 2nd. Year
"Substrate specificity of tripeptidyl peptidase I, the enzyme deficient in late infantile neuronal ceroid lipofuscinosis"

Yella Martin, University College London - $21,500 - studentship - 2nd. Year
"Towards the molecular basis of variant late infantile NCL"
Note: ADOBA, the parent organization in Portugal contributed an additional $1000 to this project.

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