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Centers of Excellence

BDSRA has developed and canadian pharmacy implemented several Batten Disease Centers of Excellence across the United States and in other countries. A Batten Disease Center of Excellence offers comprehensive coordination of viagra from canada care for individuals and is available to all families interested in receiving treatment from a team of professionals who are knowledgeable about, and have experience treating, all forms of Batten disease.

BDSRA currently has established seven Batten Disease Centers of Excellence and plans to further expand this number over the next several years. Each Center has a day each month designated as a Batten Disease Clinic Day.

Families who attend the levitra pharmacy purchase designated “Clinic Day” at a Center of Excellence will receive care from the lead pediatric neurologist as well as other healthcare professionals such as a nurse, social worker, and/or genetic counselor. Patients will also be able to receive consultations from other medical specialists such as a cardiologist, pulmonologist, gastroenterologist, etc. It is a goal of the Centers of Excellence to www.hennensobserver.com ensure that patients and their families receive well-rounded and complete care for all their needs.


NATIONWIDE CHILDREN’S HOSPITAL — COLUMBUS, OH

Lead Physician: Emily de los Reyes, MD – Pediatric Neurologist
Clinic Day: Second Monday of each month
Contact: Sally Steward, RN, MS, CNP
Phone: (614) 722-4629

From left to right: Jayne Pacheco-Phillips (Social Worker), Janelle Hancock (Secretary), Nora Snodgrass (Office Manager), Diana Shirk (RN), Dr. de los Reyes, Danielle Tincher (Secretary), Sally Steward (Nurse Practitioner).

Dr. Emily de los Reyes and Dr. E. Steven Roach.

 


MASSACHUSETTS GENERAL HOSPITAL — BOSTON, MA
Lead Physician: Katherine B. Sims, MD – Pediatric Neurologist
Clinic Day: Third Thursday of each month
Contact: Kellie Burke, Clinic and order prescription propecia Lab Coordinator
Phone: (617) 726-5732

Kellie A. Burke; Dr. Katherine B. Sims; Susan Cotman, PhD; Danielle Metterville, GC; Yi Cao, PhD; Xin Feng; Marcy MacDonald, PhD; and Kendrick Goss, PhD.

 


UNIVERSITY OF ROCHESTER MEDICAL CENTER — ROCHESTER, NY

Lead Physicians: Jonathan W. Mink, MD, PhD & Jennifer Kwon, MD – Pediatric Neurologists
Clinic Days: Friday mornings
Contact: Amy Vierhile, PNP
Phone: (585) 275-4762

Click here to read a news story about URMC being named a Batten Disease Center of Excellence

Fred Marshall, Amy Vierhile, Nicole Newhouse, Jon Mink, Paul Rothberg, Jennifer Kwon, Heather Adams, Erika Augustine, and Lisa de purchase viagra etc from canada Blieck.


OREGON HEALTH & SCIENCE UNIVERSITY/
DOERNBECHER CHILDREN’S HOSPITAL — PORTLAND, OR

Lead Physicians: Robert D. Steiner, MD – Pediatrics; Amira Al-Uzri, MD – Pediatric Nephrologist
Clinic Day: Third Tuesday of each month
Contacts: Abigail Hata, MS, CGC – (503) 418-1061 or Sothea Ros, Clinic Coordinator – (503) 494-7859

Click here to read a news story about OHSU being named a Batten Disease Center of Excellence

Back Row: Mark Pennesi, MD, PhD; Robert Steiner, MD; Nate Selden MD, PhD; Tom Koch, MD. Front Row: Jill Christie, PA; Amira Al-Uzri, MD; Jessica Adsit, MS.


HOSPITAL DE NIÑOS DE LA PROVINCIA DE CÓRDOBA — ARGENTINA-CEMECO

Lead Physicians: Norberto Guelbert, MD, PhD – Metabolic Genetics
Raquel Dodelson de Kremer, MD, PhD – Metabolic Genetics
Clinic Day: First Monday of each month
Contact: Inés Noher de Halac, PhD
Phone: (+54) 351 4575974

From left to right: V. Tapia Anzolini, Technician; N. Guelbert, MD, PhD; A.M. Oller, PhD; R. Dodelson de Kremer, MD, PhD; I. Noher de Halac, MD, PhD; I.A. Cismondi, MSc; Romina Kohan, PhD; G. Alonso, MSc.


THE BLUE BIRD CIRCLE CLINIC BATTEN DISEASE CENTER OF EXCELLENCE
AT TEXAS CHILDREN’S HOSPITAL — HOUSTON, TX


Lead Physician: Gary D. Clark, MD – Pediatrics, Neurology and Neuroscience
Clinic Day: First Friday of viagra costs each month
Contact: Pat Funston
Phone: (832) 822-1759 [Main]  //  (832) 822-1750 [Clinic]


INSTITUTE FOR MOTHER AND CHILD HEALTHCARE OF SERBIA — BELGRADE
Lead Physician: Ruzica Kravljanac, MD, PhD – Neurological Department
Clinic Day: Third Wednesday of each month
Contact: Ruzica Kravljanac, MD, PhD – (+381) 64 261 2210
Appointments: Nurse Ljubica – (+381) 11 310 8242

Dr. Ruzica Kravljanac with Center of Excellence team and families.