Saturday, 2nd October 1999 at Heather House 
Heather Drive, 
Tadley, Near Basingstoke 
 
Speakers include:  
      Dr Irene Hofman 
      Dr Hannah Mitchison 

Who is the seminar for? 
The Seminar is aimed at families and others involved in the care of children and adults with all forms of Batten disease.  Interested professionals are welcome to attend should they wish to.  Organised activities will be provided for any children who want to attend. 

What are the aims of the day? 

• To provide an update on current genetic research in to Batten disease in the UK 
• To examine the medical care provided for people with Batten’s disease in Holland and the lessons that might be learned from it. 
• To provide workshops for the exchange of information and experience on practical issues such as social work access, benefit entitlement and statementing. 

How do I book? 
Please Contact:  Joan Deeley or Sasha Scambler 
        seeAbility, 56-66 Highlands Road, 
        Leatherhead, Surrey, KT22 8NR 
        tel: 01372 373086,  fax:  01372 370143 
        e-mail:  research@seeability.u-net.com 
        (making cheques payable to seeAbility) 

Closing date for applications: Friday, 10th September 1999 

Programme for the day 

 10:00 - 10:30   Venue open for coffee 
 10:30 - 10:45   Welcome 
 10:45 - 11:45   Session 1 - Dr Irene Hofman - An international perspective on Batten’s Disease 
 11:45 - 12:00   Coffee Break 
 12:00 - 13:00   Session 2 - Dr Hannah Mitchison an update on current genetic research 
 13:00 - 14:30   Buffet Lunch 
 14:30 - 15:00   BDFA Update 
 15:00 - 16:00   Social Care Issues:  Social Services, Education Benefits 
 16:00 - 16:30   Summary of findings and future plans 
 16:30 - 17:00   Tea and Departure 
 
 
Posted September 16, 1999. 

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