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January 2012
Updated: 2012-01-09 20:53:11
October 2011
Updated: 2011-10-09 19:41:38
July 2011
Updated: 2011-10-09 19:37:39

Help Fund Research


American Board of Genetic Counseling

Last Updated 2010-11-29 at 16:57:37


National Soceity of Genetic Counselors

Last Updated 2010-11-29 at 16:56:27


Family Health History Initiative

Last Updated 2010-11-29 at 16:48:58
Surgeon General and the U.S. Department of Health and Human Services has launched a national public health campaign to encourage all American families to learn more about recording their family health history.

Genetics Home Reference

Last Updated 2010-11-29 at 16:47:12
The U.S. National Library of Medicine guide to understanding genetic conditions provides information about the effects of genetic variations on human health.

Genetic Alliance

Last Updated 2010-11-29 at 16:44:39
Genetic Alliance is a nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.

National Tay-Sachs & Allied Diseases Association

Last Updated 2010-11-10 at 09:24:52

The mission of the National Tay-Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.



Gene Reviews

Last Updated 2010-11-10 at 09:23:48

Detailed overview of Neuronal Ceroid-Lipofuscinoses, including diagnosis and symptoms



Hide and Seek Foundation

Last Updated 2010-11-10 at 09:22:43

Hide & Seek is a community of people dedicated to finding treatments and cures for a devastating genetic condition called Lysosomal Disease.



National Institute of Health

Last Updated 2010-11-10 at 09:21:43

NIH’s mission is to seek fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce the burdens of illness and disability.



National Institute of Neurological Disorders and Stroke

Last Updated 2010-11-10 at 09:20:15

The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the U.S. Department of Health and Human Services. NINDS has occupied a central position in the world of neuroscience for more than 50 years.

More than 600 disorders afflict the nervous system. Common disorders such as stroke, epilepsy, Parkinson’s disease, and autism are well-known. Many other neurological disorders are rare-known only to the individuals and families affected, their doctors, and scientists who look to rare disorders for clues to a general understanding of the brain as well as for treatments for specific diseases. Neurological disorders strike an estimated 50 million Americans each year, exacting an incalculable personal toll and an annual economic cost of hundreds of billions of dollars in medical expenses and lost productivity.



National Society of Genetic Counselors

Last Updated 2010-04-01 at 11:05:18
The National Society of Genetic Counselors allows you to find information on genetics as well as locate a genetic counselor in your area. A genetic counselor can coordinate carrier testing, explain to a family what can be learned through testing and the limitations, and explain possible outcomes a family can expect when the results are delivered. When the results are given, a genetic counselor can help interpret the results for the family, answer questions, recommend additional testing or explain available options.