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Current NewsFlash - Updated March 13th
BDSRA 2008 CONFERENCE - Registration Package
Taylor's
Tale
gathers support from NFL Commisioner, Roger Goodell, to tackle Batten
Disease. Video Public Service Announcement: Windows
wmv - 500 KB or Broadband
- 3 MB
FUNDRAISER
FRIDAY FOR TAYLOR KING
Family cultivates hope as child battles disease
University
of Rochester Press Release
January
2008
Drug
Trial for Juvenile
Batten Disease
Finally,
after 180 years, we may be able to do something about Juvenile Batten
disease. Please, read on
. . .
Rochester
Receives $1.2 Million to Battle Rare Childhood Disease:
Exciting
details ! ! !
Latest IRS Form 990 and Audit Available - Look on the About BDSRA or the CFC page.
Disease
General Information
Batten
Disease Testing
Research
& Clinical News RFP
08!
Recent
NCL Publications
Scientific/Med
Advisory Boards
Robby
Benson
supports
BDSRA
Roger
Goodell, NFL
supports
BDSRA
CFC
Agency 11781
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