We rely on our supporters to help raise funding for and awareness of Batten disease. There are endless ways to get involved. Host a fundraising event, start a letter-writing campaign, or simply ask friends and family for their support. We offer hundreds of ideas in our handbook and how-to guides to get you started.
No matter what you choose to do to aid in research and program services for our families, we are here to help you along the way. We have everything you need to fundraise and spread the word about Batten disease. Our Fundraising Resource Guide and our Fundraiser in a Box Guides are available to help you with events that have been tried and true over the years by our families and their friends. Materials such as brochures, videos, banners, photos, teddy bears, ribbon awareness magnets and bracelets are available in our BDSRA Store. These items are always available to those holding fundraisers on behalf of BDSRA.
BDSRA Logo →
The BDSRA logo is for your use in any printed materials you might like to print and share for your fundraising events, letters, and press releases. We have two additional logos available. If you need further assistance with logos, please contact us at (800) 448-4570.
Printable BDSRA Brochure →
View and download the newest BDSRA brochure. The brochure is great for spreading awareness about Batten Disease or asking people to make a donation.
Sample Press Release →
Use this sample press release to share your family story or upcoming events with your local media outlets.
Celebrity Contact Letter →
A sample document for addressing a potential celebrity sponsor/participant for a fundraising activity.
Corporate Conference Support Letter →
A sample letter for contacting potential corporate sponsors for support of the annual conference.
BDSRA Postage Label →
Private label postage now available on Zazzle.com! This is a unique opportunity to help build awareness to our cause. Please be sure to check out additional Batten disease merchandise and postage from other supporters as well.
WalkAThon Planning Guide →
WalkAThons are fun activities to plan and raise funds for BDSRA. You will be amazed at the amount of support and generosity that your friends, family members and business contacts will give you, simply because you ask.
Here are a few more fundraising ideas to get you started:
- Car wash
- Bake sale
- Fashion show
- Garage sale
- Softball tournament
- Casino night
- Restaurant give back night
- Lemonade stand
- Road race
- March Madness (basketball)
- Gift wrapping
- Book sale/Read-a-thon
- No show event
- Cook off
If you would like to get more involved on a personal level, we would welcome you as a volunteer. Your time can be very useful to our organization and to the families in many ways. Some of the many volunteer opportunities include:
- Fund development
- Community fundraising (events)
- Office support
Please contact us at (800) 448-4570 for volunteer opportunities in your area.
Spread the Word
We can provide you with every resource you need to advocate, spread awareness and fundraise on behalf of your loved one with Batten disease. Download materials to help with your awareness events:
- For the media and press
- Online promotion strategies
- Fundraising ideas and tips
- Promotional items