These
are our children, the faces of Batten . . .
U V
W X
Y Z
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Erin,
Caitlin, and Meaghan Vance
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Angela
Lee Sanoski Verge
Born 10/7/74
Kufs disease (Adult onset Batten disease)
Lives in Brunswick, ME
Her story in
mom's words . . .
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Tracy
Walsdorf
Born 10/15/71
Died 1/16/97
Juvenile NCL
Tracy
lived in Kenner, LA
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McGee
Walsdorf
Born 7/30/70
Died 10/29/87
Juvenile NCL
McGee
lived in Kenner, LA |
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Alex
Everett Warnshouse
Born May 15, 1979
Died 1/21/91
Late Infantile NCL
Alex
lived in Canandaigua, NY |
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Andre
Waters
Born 5/31/97
Late infantile
Lives in Manassas, VA |
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Hunter
Brittney Watkins
Born 7/13/2000 and handed over to her Lord on March 28, 2008
LINCL
She lived and loved in Mason , MI
http://www.hugs4hunter.org/
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James
Huntington “Hunter” Watkins
Born 1/14/03
Infantile NCL
Greenville , SC
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Britt
Ashley Watson
lived 4/5/74 - 1/10/94
with Juvenile NCL
in Claxton, Tennessee
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Jordan
Drew Watson
lived 12/5/79 - 9/20/01
with
Juvenile NCL
in Claxton, Tennessee |
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Timothy
Weaver
Born 10/20/80
Died 9/14/06
Juvenile
Lived in Ft Collins, CO |
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Tyson
Weaver.
Born November 18, 1974
Died Sept.12, 2004
Juvenile
NCL
Lived in Fort Collins, CO
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Nicholas
Wellner
Born 08/05/2001
Diagnosed 02/08 with Infantile NCL
Lives in Waterloo, IA
j.wellner@mchsi.com |
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Amber
Whaley
Lived January 13, 1984 to July 25,2007
Juvenile NCL
Memphis,
TN
Web
page
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Michael
Wheeler
Born 6/22/76
Died 1/11/97
Juvenile
Lived in Baltimore, MD
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Ryan
Andrew White
Born January 16, 1988
Died 7/13/01
Late Infantile NCL
Ryan
lived in Walnutport, PA |
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Carolyn
Wilhelm
Born 9/24/75
Died 3/14/98
Juvenile
Carolyn
lived in Cincinnati, OH
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Martin
Williams
Born April 2, 1996
Died 2/27/05
Late Infantile
Lived in Westmiter, CA
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Amy
Wilson
Born 8/13/91
Died 6/30/01
Late
Infantile NCL
Amy
lived in Cordova, TN |
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Logan
Witt
Lived October 9, 1997 to May 5, 2007
Late Infantile NCL
Logon lived in Heber Utah
webpage: www.wittwarriors.com
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Tyrell
Witt
Lived October 9, 1997 to May 4, 2007
Late Infantile NCL
Tyrell lived in Heber Utah
webpage: www.wittwarriors.com
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Lisa
Young
Born 1/13/81
Died 11/29/95
Late
Infantile NCL
Lisa
lived in Milmay, NJ |
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Amy
Zieroff
Born - 12/9/76
Died - 12/2/96
Juvenile
Lived in Toledo, OH |
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Doug
Zieroff
Born - 4/15/74
Died - 1/26/05
Juvenile
Lived in Toledo, OH
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To enter
your child(ren) in our Faces of Batten site, either:
1.
Send a photo and to:
Lance
Johnston
c/o BDSRA
120 Humphries Dr., Suite 2
Reynoldsburg, OH 43068
with the information for
the web page.
Or
preferably ...
2.
E-mail an electronic photo (.jpg, .tif, .pcx or .bmp) as an attachment
with the information to Lance
Johnston.
THESE PHOTOS ARE
FOR VIEWING FROM THIS WEBSITE ONLY. THEY MAY NOT BE COPIED, REPRODUCED
OR USED IN ANY OTHER MANNER WITHOUT EXPRESS WRITTEN CONSENT OF THE BATTEN
DISEASE SUPPORT AND RESEARCH ASSOCIATION. LEGAL ACTION WILL BE TAKEN
TO THE FULL EXTENT OF THE LAW FOR ANY UNAUTHORIZED USE, REPRODUCTION
OR COPYING OF THESE PHOTOS.
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