BDSRA: Batten Disease Support and Research Association
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faces 

These are our children, the faces of Batten . . .  U    V     W   X   Y   Z
Erin, Caitlin and Meaghan Vance Erin, Caitlin, and Meaghan Vance 
Angela Lee Sanoski Verge

Angela Lee Sanoski Verge
Born 10/7/74
Kufs disease (Adult onset Batten disease)
Lives in Brunswick, ME
Her story in mom's words . . .

 
Tracy Walsdorf Tracy Walsdorf  
Born 10/15/71
Died 1/16/97
 
 
Juvenile NCL  
Tracy lived in Kenner, LA
McGee Walsdorf McGee Walsdorf 
Born 7/30/70
Died 10/29/87
 
 
Juvenile NCL  
McGee lived in Kenner, LA
Alex Everett Warnshouse Alex Everett Warnshouse  
Born May 15, 1979  
Died 1/21/91  
Late Infantile NCL   
Alex lived in Canandaigua, NY
Andre Waters Andre Waters
Born 5/31/97
Late infantile
Lives in Manassas, VA
Hunter Brittney Watkins Hunter Brittney Watkins
Born 7/13/2000 and handed over to her Lord on March 28, 2008
LINCL
She lived and loved in Mason , MI

http://www.hugs4hunter.org/
James Huntington Watkins

James Huntington “Hunter” Watkins
Born 1/14/03
Infantile NCL
Greenville , SC

Britt Ashley Watson

Britt Ashley Watson
lived 4/5/74 - 1/10/94
with Juvenile NCL
in Claxton, Tennessee

Jordan Drew Watson Jordan Drew Watson
lived 12/5/79 - 9/20/01

with Juvenile NCL
in Claxton, Tennessee
Timothy James Weaver Timothy Weaver
Born 10/20/80
Died 9/14/06
Juvenile
Lived in Ft Collins, CO
Tyson Weaver

Tyson Weaver.
Born November 18, 1974
Died Sept.12, 2004
Juvenile NCL  
Lived in Fort Collins, CO

Nicholas Wellner Nicholas Wellner
Born 08/05/2001
Diagnosed 02/08 with Infantile NCL
Lives in Waterloo, IA
j.wellner@mchsi.com
Amber Whaley

Amber Whaley
Lived January 13, 1984 to July 25,2007
Juvenile NCL

Memphis, TN
Web page

Michael Wheeler
Born 6/22/76
Died 1/11/97
Juvenile
Lived in Baltimore, MD

Ryan Andrew White Ryan Andrew White  
Born January 16, 1988  
Died  7/13/01 
Late Infantile NCL  
Ryan lived in Walnutport, PA
Carolyn Wilhelm

Carolyn Wilhelm 
Born  9/24/75 
Died  3/14/98 
Juvenile 
Carolyn lived in Cincinnati, OH

Martin Williams

Martin Williams
Born April 2, 1996
Died 2/27/05
Late Infantile
Lived in Westmiter, CA

Amy Wilson Amy Wilson  
Born 8/13/91
Died  6/30/01    
Late Infantile NCL  
Amy lived in Cordova, TN
Logan Witt

Logan Witt
Lived October 9, 1997 to May 5, 2007
Late Infantile NCL
Logon lived in Heber Utah
webpage:
www.wittwarriors.com

Tyrell Witt

Tyrell Witt
Lived October 9, 1997 to May 4, 2007
Late Infantile NCL
Tyrell lived in Heber Utah
webpage:
www.wittwarriors.com

Lisa Young Lisa Young
Born 1/13/81
Died 11/29/95
Late Infantile NCL
Lisa lived in Milmay, NJ
Amy Zieroff
Born - 12/9/76
Died - 12/2/96
Juvenile
Lived in Toledo, OH

Doug Zieroff
Born - 4/15/74
Died - 1/26/05
Juvenile
Lived in Toledo, OH

 


To enter your child(ren) in our Faces of Batten site, either:

1.  Send a photo and to:

Lance Johnston
c/o BDSRA
120 Humphries Dr., Suite 2
Reynoldsburg, OH 43068

with the information for the web page. 

Or preferably ...

2.  E-mail an electronic photo (.jpg, .tif, .pcx or .bmp) as an attachment
with the information to
Lance Johnston.

THESE PHOTOS ARE FOR VIEWING FROM THIS WEBSITE ONLY. THEY MAY NOT BE COPIED, REPRODUCED OR USED IN ANY OTHER MANNER WITHOUT EXPRESS WRITTEN CONSENT OF THE BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION. LEGAL ACTION WILL BE TAKEN TO THE FULL EXTENT OF THE LAW FOR ANY UNAUTHORIZED USE, REPRODUCTION OR COPYING OF THESE PHOTOS.


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