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Charlie
Martland
Born 12/23/91
Died
8, August, 2003
Late Infantile NCL
Charlie
lived in Huddersfield, England
cpm@cmartland.freeserve.co.uk
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Brittany
Mastronardi
Born 8/3/91
Died 10/31/2002
CLN6 Variant NCL
Brittany lived in Ruthven, Ontario Canada
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Angela
McAlpine
Born 3/2/85
Died 11/15/96
Late Infantile NCL
Angela
lived in East Kilbride, Scotland |
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Gustavo
Caetano de Melgaço
Born 18/07/1980
Juvenile
Lives in Patos de Minas, Minas Gerais, Brasil
raquel.de.faria@terra.com.br
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Angie
Natalia Melgarejo
cumpleaños el 14 de abril de 1992
NCL3
en Berazategui provincia de Buenos Aires, Argentina
Chau Daniel papa de Angie dmelgare@hotmail.com
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Kaitlyn
Middlemiss
Born 5/18/93
Late Infantile NCL
Lives in Duncan, British Columbia
bongrl@telus.net |
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Nicola
Needham
Born 1/21/96
Died 12/2/01
Late Infantile NCL
Nicola
lived in Wellington, NZ |
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Kristóf
Németh
Lived 02/23/96 until
7/29/06
Late Infantile NCL
He
lived in Mártírok, Hungary
Nemeth.Laszlo@hu.hvb-cee.com
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Antoniya
Sharval Mae Noble
Born 10th May 1991
Juvenile NCL
Lives
in Auckland, New Zealand
pixiepippa@hotmail.com
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Fannar
Bjarki Olafsson
Born 1/6/93
Died 11/3/99
Late Infantile NCL
Fannar lives
in Kopavogur, Iceland |
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Llinos
Elin Owen
Born 8/27/96
Late Infantile
Llinos
lives in Anglesey, Wales
jackie@llynnon.freeserve.co.uk |
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Emma
Parkinson
Born 01/07/97
Late Infantile
Emma lives in Bookham, Surrey, UK.
Steve.Parkinson@mouchel.com
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Benjamin
Pickering
Born on 24th August 1997
Late Infantile Battens
Ben lives in Kingston-upon-Thames, England
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Wagner Pires de Oliveira Júnior
Born: 02/20/1990
Juvenille
Lives in São Roque, São Paulo, Brazil
email: sueli.fernandes6@itelefonica.com.br/sueli.fernandes6@hotmail.com |
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Tristan
Shaun Quarmby
Born: 21 January 1999
Diagnosis: Late Infantile NCL
Tristan lives in Cape Town, South Africa
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Juliane Rabello de Souza
Born 7/30/90
Died 5/23/00
Infantile NCL
Lived in Curitiba, Parana, Brazil
mcrabello@ineparnet.com.br |
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Kerry
Anne Randles
Born 10/24/95
Died March 23, 2005
Late Infantile NCL
Kerry
lived in Cheshire, England
dawn.randles@ntlworld.com
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Catalina
Rivera
Born 2/7/83
Juvenile NCL
She
lives in Santiago, Chile
antes: lrivera@browne.cl
ahora: luis@acta.cl |
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Thairy
Liliana Rojas
Born 3/17/90
Died 5/18 /04
Late Infantile NCL
Lived
in Tamare-Venezuela
fliarojas@hotmail.com
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Leah
Rae Sage
Born on 4/21/94 and died 6/25/01
Late Infantile NCL
Leah
in Victoria, BC, Canada
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Jack
Scatchard
Born 8/22/92 and died 10/11/99
Late Infantile
Jack
lived in Sheffield, England
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Stephanie
Andrea Schneider
Born November 26,1993
Died October 30,2004
Late Infantile
Stephanie lived in Toronto, Ontario, Canada
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James
Emile Seguin
Born 7/10/1992
Died 5/07/1998
Late Infantile NCL
James lived in Newfoundland, Canada |
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Ghazanfar
Ali Shah
Born 09/04/75
Died 08/04/86
Juvenile NCL
Ghazanfar
and brother Nabeel lived in Karachi,
Pakistan
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Nabeel
Shah
Born 04/30/71
Died 09/25/83
Juvenile NCL
Nabeel
and brother Ghazanfar
lived in Karachi,
Pakistan |
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Bobbie
Shone (left)
Born 27/08/96
Late Infantile
&
Danni Shone (right)
Born 21/01/98
Late Infantile
Lives
in the U.K, visit web
site
mark@dannibob.fsnet.co.uk
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Ridge Sinclair
Born Nov. 3, 1996
Died March 28, 2006
Late Infantile NCL
Lived in Winnipeg , Manitoba ; Canada
nancy_sinclair_19@hotmail.com |
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Sacha
Skinner
Born 19th September 2000
Late Infantile
Lives in Brighton, East Sussex, UK www.sachasstory.co.uk
neil2-@hotmail.co.uk |
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Siobhan Tegan Sowry
Born 2/18/95 and died 11/26/02
Late Infantile NCL
Siobhan lived in Dapto, NSW, Australia
beth.sowry@ahmg.com.au |
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 Rebecca and Andrea Sparkes
Born August 24, 2001 Diagnosed July 2005
Late Infantile
The twins live in Conception Bay North, Newfoundland, Canada |
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Tina Speer
Born 6/13/86
Died 4/1/95
Late Infantile
Tina lived in Abbotsford, BC, Canada |
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Kirsty
Ann Stevens
Born 11/17/86
Juvenile NCL
Lives in Horchurch, Essex, England
cargar@skynow.net |
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Azra
Suhonic
Born 04/20/89
Passed 12/29/03
Late Infantile
Azra lived in Toronto, Ontario, Canada
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Camila Pisani Suenaga
Born 30/01/1995
Lives in Santa Catarina,Brazil
CLN3 Juvenile
Cristina's (mom) email: cpsuenaga@bol.com.br |
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Brendan
Konrad Taylor
Born 10/11/89
Died 2/25/99
Late Infantile NCL
Brendan
lived
in Courthey, BC |
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Raymond
Bjarne Taylor
Born 3/26/88
Died 12/25/96
Late Infantile NCL
Raymond
lived
in Courtney, BC |
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Nina
Tienhaara
Born 7/14/98
INCL
Nina lives in Kerimäki, Finland
aino_janatuinen@hotmail.com
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Marilynn Ruth Toeppner
She was born October 10th 1963
She passed away March 4th 1970
with possibly Late Infantile NCL
She lived in Powassan, Ontario Canada |
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Arttu
Virtaniemi
Born: 1/15/01
&
Roosa Virtaniemi
Born: 2/13/99
Both have INCL and
Live in Luvia, Finland
saku.virtaniemi@suomi24.fi
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Nadine
Wallace
Born : 25/08/1995
Died : 12/04/2001
Late Infantile
South Africa, Gauteng Tel. sharon.pcdynamics@eject.co.za |
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Joshua
Luke Ward
Born 4th November 1989
Juvenile NCL
Lives in Brisbane, Queensland, Australia
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Tressie
Wells
Born 4/19/61
Died 5/26/02
Juvenile NCL
Tressie lived in Seal Cove,
Newfoundland, Canada
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Kyle
Wester
Born 9/14/89
Juvenile NCL
Kyle
lives in Caledon East, ON, Canada
will.wester@bellnet.ca
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Zac Westrupp
Born: 4-8-00
Infantile Battens
Lives: Invercargill, New Zealand
email:
channyw_@hotmail.com
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Gareth
Williams
17 September 1995 - 11 February 2004
Late Infantile NCL
Gareth
lived in Port
Elizabeth, South Africa
chantel@mobilesolutions.co.za
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