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Recent Bulletins

Progresses in Batten disease research (video)
Updated: 2010-08-30 16:25:54
Dog Gene Offers Clues to Rare Human Brain Disease
Updated: 2010-08-30 16:25:34
Is it time we paid more attention to rare disease?
Updated: 2010-08-25 10:00:56

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Donate to Batten Disease and help fund the necessary research developments to find solutions to Batten Disease.

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Board of Directors

Phone: 704.756.0521
Email: chawk328@ctc.net
Chris Hawkins
Position: At Large
Tenure: 3 year(s)
Location: Concord, North Carolina, United States
Website | Facebook
Professional Experience:
  • Wachovia, Manager
About:
I have two children that have a rare, inherited genetic disorder called Batten Disease. I grew up in suburban Detroit, hence the love of hockey, GO WINGS, and U-M football.

Board of Directors

The National Board of Directors is responsible for overseeing the affairs of BDSRA. The Board is all volunteer and is elected by the general membership who have paid their annual dues.

Rob Geer

At-Large
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Wendy Bills, Ph.D.

At Large
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Sara Thompson

At Large
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T. Craig Benson

At Large
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Warren Shuros

At Large
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Fred Weaver

At Large
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Chris Lowden, Ph.D.

At Large
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Linda Houghtby

Secretary
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Joel Karg, CPA

Treasurer
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Marcus Kerner, Esq.

2nd, Vice President
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Kim Zellmer, Esq.

1st, Vice President
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Jane Emanuel, M.D.

President
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Chris Hawkins

At Large
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