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Recent Bulletins
Help Raise Funds
Donate to Batten Disease and help fund the necessary research developments to find solutions to Batten Disease.Board of Directors
The National Board of Directors is responsible for overseeing the affairs of BDSRA. The Board is all volunteer and is elected by the general membership who have paid their annual dues.
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Rob Geer At-Large View Profile |
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Wendy Bills, Ph.D. At Large View Profile |
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Sara Thompson At Large View Profile |
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T. Craig Benson At Large View Profile |
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Warren Shuros At Large View Profile |
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Fred Weaver At Large View Profile |
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Chris Lowden, Ph.D. At Large View Profile |
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Linda Houghtby Secretary View Profile |
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Joel Karg, CPA Treasurer View Profile |
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Marcus Kerner, Esq. 2nd, Vice President View Profile |
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Kim Zellmer, Esq. 1st, Vice President View Profile |
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Jane Emanuel, M.D. President View Profile |
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Chris Hawkins At Large View Profile |














