Featured Events
2012 BDSRA Conference
Recent Bulletins
Help Fund Research
Lighting The Way
Stay in touch with the latest Batten Disease News, Studies and Developments.Reach us by phone:
1-800-448-4570 toll free or 740-927-4298 (Lance Johnston)
1-877-642-5512 toll free or 740-927-4513 (Nancy Carney)
1-866-287-7233 toll free or 740-927-4203 (Adina Ryan)
E-mail:
bdsra1@bdsra.org, Lance Johnston, Executive Director, BDSRA
nancycarney@bdsra.org, Nancy Carney, RN, Family Medical Liaison/Educator
aryan@bdsra.org, Adina Ryan, Director of Development
lisaweston@bdsra.org, Lisa Weston, Programs Director
kim@zellmerlawfirm.com, Kim Zellmer, Board President
webmaster@bdsra.org, Eric Leslie, Web site maintenance
Postal Mail Address:
Batten Disease Support and Research Association
166 Humphries Dr.
Reynoldsburg, OH 43068
See our upcoming events and how you can create your own!
