Website Translation

Recent Bulletins

Progresses in Batten disease research (video)
Updated: 2010-08-30 16:25:54

Help Raise Funds

Donate to Batten Disease and help fund the necessary research developments to find solutions to Batten Disease.

Donate To BDSRA Online

Lighting The Way

Stay in touch with the latest Batten Disease News, Studies and Developments.

Name:
Address:
City:
State / Province:
Country:
Telephone:
E-mail:
How may we help you?
Would you like someone in BDSRA to contact you?
Yes No
Preferred Method of Contact
Phone Email


Reach us by phone:
1-800-448-4570 toll free or 740-927-4298 (Lance Johnston)
1-877-642-5512 toll free or 740-927-4513 (Nancy Carney)
1-866-287-7233 toll free or 740-927-4203 (Adina Ryan)

E-mail:
bdsra1@bdsra.org, Lance Johnston, Executive Director, BDSRA
nancycarney@bdsra.org, Nancy Carney, RN, Family Medical Liaison/Educator
aryan@bdsra.org, Adina Ryan, Director of Development
jemanuel@tconl.com, Jane Emanuel, President, BDSRA
webmaster@bdsra.org, Eric Leslie, Web site maintenance

Postal Mail Address:
Batten Disease Support and Research Association
166 Humphries Dr.
Reynoldsburg, OH 43068

See our upcoming events and how you can create your own!