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Recent Bulletins

Progresses in Batten disease research (video)
Updated: 2010-08-30 16:25:54
Dog Gene Offers Clues to Rare Human Brain Disease
Updated: 2010-08-30 16:25:34
Is it time we paid more attention to rare disease?
Updated: 2010-08-25 10:00:56

Help Raise Funds

Donate to Batten Disease and help fund the necessary research developments to find solutions to Batten Disease.

Donate To BDSRA Online

4th Annual OurBoys 5k Fundraiser

May
08
Time: 8:00am
Location: Concord, NC
It is that time of year again, so please join us on May 8th, 2010 for the 4th annual ourboys 5k at Harris Road Middle School in Concord. As usual we will have a timed 5k walk/run, a 1 mile fun run, children’s activities, a car wash and a whole lot of fun. We would love to have you come out and run, bring the family for some fun or volunteer some time (contact andy.brown@wachovia.com) to help us make the event a success. Please let your family and friends know about this very worthy cause and event also. Online registration is open for the event at http://www.sportoften.com/events/eventDetails.cfm?pEventId=4902. Sponsorships are still available if you would like more information contact us back!!! Sponsorship dollars and sponsors in kind are more than welcome. If you can’t make it out but would like to donate anyway please visit www.bdsra.org. Remember that all your donations to BDSRA are tax deductible and you will get a receipt for tax purposes.

Event Attachement: PDF Download

See Previous
Sep
18

3rd Annual Highlandville Fun Fest

The 3rd Annual Highlandville Fun Fest will be held September 18th in Highlandville, IA. This event is being hosted by the BDSRA Minnesota Chapter. Events include live and silent auctions, a duck race down the river, food, fun and more! For more information, please visit www.mnbdsra.org.
Location: Highlandville, IA
Click here to see Details
Sep
25

Bash for Battens

The 2nd Annual Bash for Battens will be held September 25th in Maple Grove, MN. The all day event features silent and live auctions, speakers, and delicious food! The event is hosted by the BDSAR Minnesota Chapter. For more information, please visit www.mnbdsra.org.
Location: Maple Grove, MN
Click here to see Details
Oct
08

Australia Chapter 2010 Conference

Project of Hope.... The Chapter hopes that families, friends, doctors and researchers will came together in a wonderful and extraordinary way. Families travel from all states of Australia, parts of New Zealand and this year, perhaps even from the USA. Assistance (by application) can be given to families travelling from afar. The Project aims to provide families and their friends, teachers and medical staff, affected or involved by this Disease with information, education and social interaction in various aspects of Batten Disease.
Location: Sea World Resort & Water Park, Gold Coast, Queensland
Click here to see Details
Oct
22

Batten disease fundraising golf tournament

A 4 man scramble with dinner after the tournament.
Location: Slidell, LA
Click here to see Details