
Boards
Board of Directors
Kim Zellmer, Esq. — President
Attorney, private practice
Mission Hills, KS
Rob Geer — 1st Vice President
Kelly Services Business Development
Caledonia, MI
Tracy VanHoutan — 2nd Vice President
Chicago Board of Exchange
Downers Grove, IL
Joel Karg, CPA — Treasurer
CPA
Dublin, OH
Christopher Lowden, PhD — Secretary
Technical Account Manager, Accelrys Inc.
Raleigh, NC

Craig Benson — At Large
CEO, Rules Based Medicine
Austin, TX
Mike Collins — At Large
Durable Medical Equipment Sales
Mokena, IL

Christopher Dainiak, MD — At Large
Physician, NH Gastroenterology
Bedford, NH

Tony Ferrandino
Financial Advisor, Merrill Lynch
Newtown, PA

Debbie Ham
Executive Director, Support for Early Learning & Families
Vancouver, WA
Chris Hawkins
Manager, Wachovia
Concord, NC
Medical Advisory Board
- Katherine Sims, MD — Chair
Director, Developmental Neurogenetics Clinic
Massachusetts General Hospital, Boston, MA - Heather Adams, PhD
Child Neuropsychologist
University of Rochester, Rochester, NY - Rose-Mary Boustany, MD
Director, Neurogenetics
Pediatric Neurology and Genetics
American University, Beirut, Lebanon - Jennifer Kwon, MD, MPH
Associate Professor of Neurology and Pediatrics
University of Rochester, Rochester, NY - Emily de los Reyes, MD
Pediatric Neurologist
Nationwide Children’s Hospital, Columbus, OH - Jonathan Mink, MD, PhD
Director, University of Rochester Batten Diseases Diagnostic and Clinical Research Center
University of Rochester, Rochester, NY
Scientific Advisory Board
- Sandra Hofmann, MD, PhD – Chair
Professor, Internal Medicine, Molecular Genetics
University of Texas Southwestern Medical Center, Dallas, TX - Jonathan Cooper, PhD
Professor at the Institute of Psychiatry
King’s College London, London, UK - Susan L. Cotman, PhD
Assistant Professor of Neurology, Harvard Medical School and Massachusetts General Hospital
Harvard Medical School, Cambridge and Massachusetts General Hospital, Boston, MA - Beverly L. Davidson, PhD
Professor of Medicine, Neurology and Physiology & Biophysics,
University of Iowa - Mark S. Sands, PhD
Professor, Department of Medicine, Division of Oncology
Washington University in St. Louis, St. Louis, MO - David E. Sleat, PhD
Associate Professor
Center for Advanced Biotechnology and Medicine
University of Medicine and Dentistry of New Jersey-Robert Wood Johnson Medical School, Piscataway, NJ
