Dr. Rose-Mary N. Boustany Receives Prestigious Award
Rose-Mary N. Boustany, MD, American University of Beirut, clinician and researcher of Batten disease receives prestigious award. Dr. Rose-Mary Boustany, …
Batten disease is a rare neurological disease that currently has no cure. We are here to:
About BDSRA
Batten Disease Support and Research Association (BDSRA) began in 1987 by a group of parents looking for strength and support for a disease that only gives fear and uncertainty to those it affects.
We are the only family support organization in the United States and Canada with chapters in New Zealand, Australia, South Africa, Spain and South America. We help families worldwide.
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Moving Forward! A Letter from BDSRA’s Board President
Members and Friends, I am pleased to announce that we have a new Executive Director, Margie Frazier, effective May 1. …
BDSRA Welcomes New Executive Director
BDSRA is pleased to announce that Dr. Margie Frazier will become its new executive director on May 1. Margie has …
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