Join Us in Raising Awareness for Batten Disease During Batten Disease Awareness Weekend June 1-2, 2013
We all know how important awareness is to fight and cure Batten disease. Here are some ideas for you to …
Batten disease is a rare neurological disease that currently has no cure. We are here to:
Learn more about BDSRA’s funding strategy.
Listen to a parent briefly discuss the challenges of raising a child with Batten disease.
Hear from a Batten Disease Center of Excellence doctor and parent talk about initial symptoms.
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2013 Conference Program Now Available
BDSRA’s Annual Conference July 18-21, 2013 at the Nashville Airport Marriott. A tentative 2013 Conference Program can now be found on our Conference …
BDSRA Practice Guideline RFP Open until September 1, 2013
Practice Guidelines for the management of Batten disease. BDSRA seeks to fund the development of practice guidelines for the diagnostic …
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